rare but not alone

One of the things that encourages me a lot while I deal with having a rare disease is the online community of people who have the same rare disease.  I wouldn’t wish it on anyone, but when even doctors have to google your diagnosis the first few times they see you, it’s nice to find anyone who can relate.  Another PSCer shared this the other day and I love that he got his liver and that he has used both of his leases on life to better others’ lives.  Mr. Bilikopf is a minion hero for sure.

Of Prisoners and Miracles


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s